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Photo and video submission and consent

Terms and Conditions

Thank you for considering sharing photos or video recordings with IPWSO. 

IPWSO exists to help raise awareness of Prader-Willi syndrome around the world by providing information and support to associations, families, carers and professionals. We rely on the support of our members, volunteers and social media followers to help to achieve this on a global scale. 

The use of photos and films, kindly sent to us by supporters, helps us to promote our messages, campaigns and general information across our  digital channels and marketing materials. This includes on our website, social media, printed and downloadable publications and resources, and in presentations at conferences, workshops and meetings.


As we work with other associations, including any Friends of IPWSO or other organisations that provide support to IPWSO, there may be occasions where we share these resources with third parties in order to support our global network but we will only do this after carefully checking how the images will be used.

Before submitting or sharing any photos or films with us, we ask that you complete the declaration below to agree that we may use and store your digital images to promote awareness. Once you have completed the form please email your photos or videos to us.

Please read the following terms and conditions:

  • I give permission for IPWSO to use the photographs or videos of me/my son/daughter/ward and to reproduce these for any reasonable purpose relating to the work of IPWSO and any Friends of IPWSO or other organisations that provide support to IPWSO.

  • I confirm that I have the authority to give permission to IPWSO to use this photo or video (for example do not send us photos taken by someone else such as a professional photographer or photos of someone else's child).

  • I understand that I can withdraw this permission at any time by emailing with the participant’s name.

  • I also understand that once I withdraw permission IPWSO may be unable to prevent further circulation of materials already in existence.

  • I give permission for IPWSO to edit the original format of any photograph or video.

  • I give permission for IPWSO to store and retain any photograph or video of me/my son/daughter/ward.

  • I give permission to IPWSO to store my details from the following contact form and for IPWSO to contact me regarding the use of the photo or video.

  • I confirm that I am aged over 18.

  • This section relates to photographs taken by IPWSO or our third party partners for example at our events: I give permission for IPWSO and their photographer/filmmaker to photograph/film/record me and use the materials across any digital channels and any marketing purposes deemed appropriate and necessary by IPWSO. I confirm that I understand that this may be used across social media, websites, printed marketing materials, YouTube, in presentations at conferences, mobile apps, fundraising and advertising and other marketing campaigns.

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Salisbury House
Station Road
Cambridge CB1 2LA

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Registered as a charity in England & Wales, charity no. 1182873