Ask us

IPWSO was started by parents and professionals.  We are here for parents, families, caregivers and professionals, and we can answer your questions.

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Any question.  Any time.  Just ask.

Parent to Parent

Our Board always has a majority of parents.  We know what it is like to have a diagnosis of some unknown syndrome put upon your child. 


We know what it is like to love that child, and to face the challenges the syndrome. 


Your questions can be answered by professionals in our network system, or by parents who know what it's like.  

Professional to Professional

IPWSO has a large network of professional medical experts, caregivers, teachers, and advisers. 


If you have a question to put to any of our teams (Clinical & Scientific Advisory Board, Family Care board, Professional Providers and Caregivers board, or any of our advisers), please email us. 


We will direct your enquiry to one of our boards and return with their answer.

Further information:

> What is PWS

> Treatment

> Clinical Features

> Guidance for families

> Medical Care & Research

> Residential Caregivers

Not found what you're looking for?

Get in touch and let us know how we can help you with any enquiry about Prader-Willi syndrome and how our organisation works.

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Keep up to date with the latest news, stories and research from the PWS community.


Salisbury House
Station Road
Cambridge CB1 2LA

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Registered as a charity in England & Wales, charity no. 1182873